First off, why am I so tired? Hives. Homocysteine down to 11.5, methlymalonic acid down to 257. Question. Radioactive iodine works by taking advantage of the physiology in your body (1). This isnt always true, but it is true for MOST people. Therefore, it may be found in varying amounts in all food and beverages. My question is what if I do radiation while my thyroid isnt hyperactive? Commentdocument.getElementById("comment").setAttribute( "id", "a7703e5f38024655a2d5bbdddbfa13ec" );document.getElementById("bc952adef4").setAttribute( "id", "comment" ); Hey There! It is worth pointing out, however, that some other tissues can take up the radioactive iodine such as the beta cells in your pancreas (2) though it isnt clear how much damage exists (if any) in these other cells. It Depends on These Factors, Add Back Therapy for Graves & Hyperthyroidism: When to use Levothyroxine, Hashimotos and Hyperthyroidism: Why it Happens & What it Means, How to Prevent Thyroid Surgery and Radioactive Iodine Ablation Therapy | Dr. Osansky and Dr. Childs. I feel more like a ping pong ball being bounced back and forth! Be particularly careful around infants and children, who are especially at risk for exposure complications. and I'm proud to say that over 80,000+ people have used them over the last 6 years. Have you ever heard of this before? All rights reserved. Hyperthyroidism | Endocrine Society Any advice . If you drive home after your appointment and there's another . So I stopped going. Its not just that I cant stand the heat I get overheated so fast that I have to get in the AC or I feel like Im gonna pass out. Radioactive iodine (RAI) is a treatment method for hyperthyroidism and thyroid cancer. Iodine - Consumer - National Institutes of Health I dont have another drs appointment till after the holidays. Memory loss. I am already over weight and working on losing it. What Color Should I Dye My Hair? Take Our Quiz - StyleSeat My last blood test shows TSH of 0.02 and I have been asked to go for a follow up test. I had RAI treatment year 2010, and now I am taking levothyroxine for my hormonal replacement since I am considered as hypothyroid patient. Iodine & Hair | Healthfully Severe reactions occur in 0.04% to 0.02% of people receiving contrast, with a death rate of one person in every 170,000. Results were. I have tried everything and it is frustrating. I saw 2 eye professionals. I have Graves disease and recently have a hyperthyroid flare up after being in remission, I went back on my meds but was recently taken off to see if I can do radiation. This shouldnt stop you from trying natural therapies (as long as they are relatively inexpensive and not harmful) but you should have reasonable expectations as you do so. Ive certainly seen some patients reduce their total dose of thyroid medication by undergoing some natural therapies to help restore thyroid function after RAI (but the number of patients Ive seen in this category is somewhat limited). At that time my numbers were so low I was experiencing eye problems. Thanks. Important to men is the fact that radioactive iodine can cause short-term reductions in sperm count for up to 2 years after your procedure (8). The trip will be about 45 minutes each way. This usually means that you are being overtreated and are being put into a state of hypothyroidism. A thyroid scan is a type of nuclear medicine imaging. ", Verywell Health uses only high-quality sources, including peer-reviewed studies, to support the facts within our articles. The last person put me on methazolo and I read the awful side affects. Low Iodine Diet | American Thyroid Association You have Graves' disease and had Radioactive Iodine (RAI) or a 5PM supper with VS and glucose readings. Feline Hyperthyroidism - Cornell University College of Veterinary Medicine How radiation therapy may affect your daily routine and seriously lethargic?! One study looked at 157 people and tracked them both before and after their procedure. The most common reason for RAI is the autoimmune condition known as Graves disease (6). 3 weeks after I was taken off of PTU. It's permanent; once you take the iodine capsule there is no changing your mind. I had never been to endocrinology prior and had no idea about thyroid function. My weight seems to be of no concern to him as long as my blood work looks okay. If I have all of these symptoms and have had levels increase so much, is it worth seeing another dr due to my history or do you think this is normal? Methimazole Side Effects You Should Be Aware Of (What to Expect), Hashimotos vs Graves Disease: Differences & Similarities, read more about my own personal health journey, free thyroid downloads, resources, and PDFs here, https://www.restartmed.com/hyperthyroidism-weight-gain/, https://www.restartmed.com/weight-loss-thyroidectomy/, https://www.restartmed.com/thyroid-doctor/, https://www.restartmed.com/thyroid-hair-loss/, https://www.restartmed.com/hormone-mastery/, https://www.restartmed.com/methimazole-weight-gain/, https://www.restartmed.com/product/thyroid-daily-essentials-thyroid-multivitamin/, https://www.restartmed.com/product/t3-conversion-booster/, https://www.restartmed.com/product/thyroid-adrenal-reset-complex/, https://www.restartmed.com/product/leptin-resistance-rx/, https://www.restartmed.com/normal-thyroid-levels/, https://www.restartmed.com/how-to-find-a-doctor-to-treat-your-thyroid/, https://www.restartmed.com/levothyroxine-thyroidectomy-patients/, https://www.restartmed.com/weight-loss-after-thyroid-removal/, https://www.restartmed.com/hypothyroidism-diet/, https://www.restartmed.com/product/thyroidectomy-rai-bundle/, 3 New Thyroid Support Supplements: Thyro Fuel, Thyro Biotic & Hashimotos Ab Rx, The 50 mcg Levothyroxine & Synthroid Medication Hack. If your head and scalp are exposed to radiation (usually after a brain tumor surgery), it can affect the hair follicles and cause hair loss while the rest of the body may be unaffected. While I was taking Levothyroxine About 25 years ago they killed my thyroid with radioactive iodine. Fifteen years ago diagnosed with hyperthyroidism and had RAI. The majority of radioactive iodine, therefore, will be absorbed by any remaining thyroid cells. Im 60 years old, so its not like Ive got a full life ahead of me, not a big deal. You might need contrast when you are having an X-ray, CT, MRI, or ultrasound exam. TSH. Created for people with ongoing healthcare needs but benefits everyone. Everybody tells me that my thyroid being killed should have nothing to do with the heat affecting me like it does. Follow me on Facebook, TikTok, and Instagram for up-to-date thyroid tips, tricks, videos, and more. After you get the dose, the scanner checks your entire body for signs of radioactivity. I have Graves Disease and lost 40 pounds. It doesn't matter where those cancerous cells might be. Read More. Call (800) 542-1123 or visit www.labtechinc.com to learn more about protecting your home against radioactive iodine. Free T4. If this occurs, it is usually goes away as the body heals. Rinse your hair with warm water and shampoo it. Should you expect to live a normal life afterward? In regards to your question, its normal to feel terrible if your TSH is so high, but its not normal for your doctor to try and not optimize this level. However, all of these symptoms are also part of the menopause for which I now take HRT. Why have millions of patients been treated with Radioactive Iodine . RAI is a form of radioactive nuclear medication that permanently destroys thyroid tissue. I am in a gym 3 days a week I do water therapy/aerobics 3 days a week and I still cant lose weight I try to eat a low calorie Healthy diet Mostly either paleo or keto and no matter what I do I still cant lose the belly fat. Not only can doctors NOT find a thyroid replacement that works for me due to side affects, Ive lost 70% of my hair and have to wear wig, Ive gained more weight than ever before in my life, Im constantly fatigued, in pain, moody, still have a very fast heart rate between 110-130, anxiety (like Im still hyperthyroid, but Im not.) If possible, its always ideal to try and normalize your weight BEFORE the procedure. Radioactive iodine. I dont feel like I have gone back hyper after being off my meds for 4 weeks. If you destroy the entire gland then you will definitely need to be on thyroid medication. I can barely eat . I am 67 years old and just wonder how many years I may have either way. You may also experience nausea and vomiting, as well as a decrease in appetite. This means avoiding public transportation, hotels, carpools, and in some cases, your . After that they again were having the same symptoms. I was experiencing heart palpations, diffuclty breathing while lying down, weight gain. 2. Can Hashimotos Be Reversed? https://www.restartmed.com/product/t3-conversion-booster/ is this a side effect of this proceedure. Very small amounts of iodine may also be taken up transiently by . I know it Hass to be because it started affecting me as soon as I Started losing weight and before I had been diagnosed. Or longer If you are a man, just be sure to consider this before you get your operation. RAI effects on hair - Thyroid cancer - Inspire olive oil, vegetable oils and nut oils. My GP at the time liked to keep me on that level despite blood results as he said it was better for patients to be at the higher end of the scale in case they needed a metabolic boost when ill. Potassium Iodide (KI) | Radiation Emergencies | NCEH | CDC I'm Dr. Westin Childs. The radiation comes from a radioactive substance called iodine-131. I had RAI about 15 years ago and yes I have gained weight, less energy & I sweat a lot(buckets) doing nothing If radioactive iodine treatment (RAI) is recommended as part of your treatment for Graves disease, hyperthyroidism, or thyroid cancer, you will most likely be given it as an outpatient. P.S. Apply the mixture to your hair and leave it in for 20 minutes. I have to take my Levothyroxine at midnight, as in the morning it causes me to have a jitteriness and brain fog, that is bothersome, and to have it in the time frame away from other meds and meals, midnight is the only option. I hope this post is still active. So, I need to have an exercise program, vitamin and minerals that may help, food intake regulated to progress to increasing bone mass and weight loss. Hey! New study findings show an association between the dose of a common treatment for hyperthyroidism and risk of death from solid cancers. Theres a higher risk that the cancer comes back but its also a way to preserve some thyroid function. This distinction is actually quite important. Flush the toilet twice after using it and wipe it thoroughly to properly get rid of radioactive fluids. Many clinical studies have also confirmed that weight gain after RAI is a real risk. Potassium iodide (KI) is a type of iodine that is not radioactive and can be used to help block one type of radioactive material, radioactive iodine (I-131), from being absorbed by the thyroid. I cant find anything suggesting these are expected symptoms after RAI. Lowered heart rate. This resource is dedicated to helping people with thyroid problems, hormone imbalances, and weight loss problems get the help that they need. Because your thyroid gland concentrates and stores iodine in your body. I had this feeling when I went into surgery last Tuesday, but shrugged it off as just my fears in over time. Small amounts of I-131 may also leave through your saliva, sweat and feces. My endocrinologist said he never heard someone like that after RAI, but i asked my cousin who is a family doctor back home that you will expect that will happened to you. Then, also there is the womens health portion of all this, and so I had my annual, and a polyp was found on my cervix, it was a rather large one, and thankfully no cancer cells on that, my PAP Im waiting for results. Please see these articles which explain why weight loss is so difficult after thyroid removal or RAI: https://www.restartmed.com/levothyroxine-thyroidectomy-patients/ There is nowhere else to go tricare insurance is awful. best army base in germany is dr abraham wagner married is dr abraham wagner married 1. Im at the point now where I told all the doctors for my medical team, and team being the operative word here, that Im not going to offer anymore feelings of what Im going threw, or feeling, Im not going to ask anything, nothing, you all have my lab reports and other diagnostics, y all can figure it out for yourselves! cooked green vegetables. Hair that is not being treated directly with radiation can be dyed.